A woman who had her bowel removed while she waited for drugs that may have stopped that happening hopes the Pharmac review will lead to change.
A review into the government drug buying agency has recommended 33 changes to make it more transparent, more patient focused and more equitable.
Jessica Port was referenced by the review chair Sue Chetwin in her opening remarks as a woman whose courage took her breath away.
She has the painful bowel condition, Crohns disease and was denied funding for a drug that's funded in 35 other countries.
She told health correspondent Rowan Quinn that even when she met with Pharmac, she felt they never listened.